Category Archives: cerebral palsy

Advocating for the Disabled Community

My business brand is sharing how to heal your heart with art.  I promote art because it helped me through the tough years and I felt a calling to share how I healed by creating art.

My number one passion is advocating, speaking, and sharing disability awareness either in print or in sharing my story as a motivational speaker.  This passion has been part of my life for many years.  My son Jason had spastic quadriplegic cerebral palsy.  I learned so much from this beautiful boy and realized my life changed being his mother.

I soon learned how disconnected the community was to accepting people who were different like Jason.  Wheeling Jason in a shopping mall we often were stared at or mothers would take their children’s hands and move them away from Jason as if they would catch what he had.

When Jason was first diagnosed I took him to Shriners Hospital.  I was looking for help.  They promoted helping and providing care for disabled children. Why not try?  Unfortunately, we did not receive a good reception.  I felt the coldness in the room as the doctors examined Jason without even attempting to talk to him.  They didn’t  realize he could understand verbal language, he just couldn’t express it.  We walked away from the intake knowing we would not be accepted in their program and we never did hear back from them.  They advertised their services on TV and I saw poster children were either walking on their own or with support and were able to communicate verbally.  I believe Jason did not fit their criteria as a poster child.  He was too physically disabled.

When Jason was eight years old we had to make the hardest decision in our lives, place him in a facility where he would get better medical care and 24/7 services we were unable to provide.  At home Jason was not offered SSI or Medicaid because the powers to be considered our income to be higher than their standards.  We lived on my husband’s income as a family of four.  We were living from pay check to pay check without any extra money.  We were struggling.  Jason was getting services at Easter Seals and we paid them according to an income scale.

When Jason moved away from our family and lived in a facility we chose, he received all the services he needed.  He received a monthly SSI check, Medicaid, physical therapy, occupational therapy, nursing care, doctor care and the best medical services available at Hershey Medical Center.  Everything was totally funded. I went back to work full time.  We were a normal family again… you would think.  No we were hurting, missing our son and brother.  We were not given  choices back then.  Jason did thrive at his new home and he adjusted well, for which we were very grateful.  However, we were struggling to accept Jason leaving our home. In hindsight, if we calculated all the Federal/State funds allocated to care for Jason in his new home for twenty years, in comparison to reallocating the funds to provide handicapped accessibility to live with his family, I bet it would have been less costly to provide funds for him to live with his family.

This is why I will always advocate for the rights of the disabled community.  You would think our society has improved, maybe it has, but if our president continues to mock disabled people as he did during his campaign, there is no hope for those in our society who are different.  #disabilityawareness #discrimination #motivationalspeaker

How to find your silent dreams to help create your inner passions

I know it has been a long time since my last post and for that I am sorry.  Maybe you are a follower who prefers less posts, but more quality posts.  I can do that too.  I hope you find this one a good quality post. Catchy title?  It was meant to be.  I have… Continue Reading

MY THANKSGIVING GRATITUDE

I am thankful for friends like Garth Wheeler who has the talent to express his feelings with the most amazing gift of words. His poem is something that needs to be shared to remind us all intellectually mentally and physically challenged individuals need to be respected and not mimicked. Hugs and have a wonderful Thanksgiving… Continue Reading

#SPEECHLESS

I would like to use my voice here on my blog as an open letter to the writers, directors and actors of the new sitcom on ABC, #Speechless. TO THE POWERS TO BE AT #ABC NETWORK, I was looking forward to watching your new sitcom #”Speechless” last week. You can only imagine how thrilled I… Continue Reading

ANGER – HOW TO ACKNOWLEDGE IT- HOW TO MANAGE IT

How completely blessed I am to have found someone who has the ability to help me find my way back after many years of uncertainty. It was during our session yesterday when she helped me acknowledge, since 2006, after my son passed away, the deep anger I have so expertly hidden from the world and… Continue Reading

COMMUNICATION

One of the major problems we have in our world today is the way we communicate. We either communicate too much or inaccurately; directly related to television, radio, internet, newspapers and magazines. The media exaggerates a story or misinterprets a situation creating a rise in misunderstood panic amongst groups of people the story is related… Continue Reading

DEALING WITH FEAR

Fear is an obstacle that stands in the way of progress. In overcoming our fears we can move forward, stronger and wiser within ourselves. Can you relate to the above quote? Do you live with fear that cripples your potential for success? Are your fears keeping you from reaching your dreams and goals? If you… Continue Reading

SILENT THOUGHTS

I find myself with soulful thoughts today sitting at my table, once again, at a holiday craft show. Today it is very festive with Christmas music. The setting is in a Catholic Church and my table is facing the stage where all the exquisite raffle prizes are displayed in baskets so elegantly designed. As I… Continue Reading

A Day at the Park

What a beautiful day to go for a ride.  The window is open just a bit for me to feel the warm sunshine on my face and the window is adjusted just right enough to control the wind from hitting me directly.  I am excited to know where we are going.  Normally I don’t care… Continue Reading

"Here's what I wish you would do."

http://themighty.com/2015/06/1to-the-embarrassed-parent-of-the-child-pointing-at-my-daughter/?utm_medium=email&utm_source=themighty&utm_campaign=Email_Share&utm_content=story-header Thirty years ago I wish I had access to electronics like the internet so I could express my feelings like the mother did in this story in the above link. Many times our family would go to the mall with Jason because Jason loved to be there.  He loved the colors of the store… Continue Reading